Chronic Myelomonocytic Leukemia

For all the none biking stuff. Say hello, chew the fat or flame the forum.

Re: Chronic Myelomonocytic Leukemia

Postby Rossgo » 11 Aug 2020, 15:47

Sorry to hear this Kwacky. I hope she recovers quickly, must be tough not being able to see her

Sent from my SM-G975F using Tapatalk
User avatar
Rossgo
 
Posts: 10407
Joined: 14 Mar 2014, 02:01
Location: Berkshire
Has thanked: 5333 times
Been thanked: 1336 times
Your Bike:

Re: Chronic Myelomonocytic Leukemia

Postby Frankie » 15 Aug 2020, 22:33

I suppose they are trying to keep everyone as safe a possible. I know its not the same, but can you facetime with her, (or have you been doing that) its not the same as being there, but she can see a face rather than just voices...
User avatar
Frankie
 
Posts: 3516
Joined: 11 Mar 2014, 21:37
Has thanked: 607 times
Been thanked: 1231 times
Your Bike: Fast Ones

Re: Chronic Myelomonocytic Leukemia

Postby Blade » 16 Aug 2020, 12:13

Just catching up on this. How's your mum, Kwacky? Has anyone managed to see her?
User avatar
Blade
 
Posts: 18772
Joined: 14 Mar 2014, 18:43
Location: North West
Has thanked: 3209 times
Been thanked: 3813 times
Your Bike: Kawasaki ZX10R

Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 16 Aug 2020, 13:51

She's home. Two negative covid tests. No idea what the infection was. She's had a blood transfusion. She goes back next week for more tests.

Ta for asking.
User avatar
Kwacky
 
Posts: 34437
Joined: 21 Oct 2013, 21:52
Location: Brum
Has thanked: 3624 times
Been thanked: 7400 times
Your Bike: MV F3 800, AfricaTwin AS.

Re: Chronic Myelomonocytic Leukemia

Postby Blade » 16 Aug 2020, 14:21

Glad she's home and good to hear 2 negative covid tests.

Fingers crossed the tests are good next week.
User avatar
Blade
 
Posts: 18772
Joined: 14 Mar 2014, 18:43
Location: North West
Has thanked: 3209 times
Been thanked: 3813 times
Your Bike: Kawasaki ZX10R

Re: Chronic Myelomonocytic Leukemia

Postby kiwikrasher » 16 Aug 2020, 23:00

Kwacky wrote:She's home. Two negative covid tests. No idea what the infection was. She's had a blood transfusion. She goes back next week for more tests.

Ta for asking.


That’s definitely some good news
Happiness is not a destination. It is a way of life.
User avatar
kiwikrasher
 
Posts: 7879
Joined: 17 Mar 2014, 04:32
Location: Kurrajong Heights, NSW, Australia
Has thanked: 3722 times
Been thanked: 3712 times
Your Bike: ‘16 Thruxton R. '10 Multistrada 1200 S. ‘87 GB400TT

Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 12 Dec 2020, 13:45

Mum started chemo this week. She's on the tablets. Unfortunately she reacted badly to the tablets. Her GP told her to call an ambulance, which she did.

They've done a bank of tests. She's going to be lucky if she's here in 3 months.
User avatar
Kwacky
 
Posts: 34437
Joined: 21 Oct 2013, 21:52
Location: Brum
Has thanked: 3624 times
Been thanked: 7400 times
Your Bike: MV F3 800, AfricaTwin AS.

Re: Chronic Myelomonocytic Leukemia

Postby C00kiemonster » 12 Dec 2020, 14:10

Kwacky wrote:Mum started chemo this week. She's on the tablets. Unfortunately she reacted badly to the tablets. Her GP told her to call an ambulance, which she did.

They've done a bank of tests. She's going to be lucky if she's here in 3 months.


;( sorry matey. Here if you need me (bear)
User avatar
C00kiemonster
 
Posts: 7548
Joined: 22 Oct 2013, 07:11
Location: Froggie Land
Has thanked: 3364 times
Been thanked: 1601 times
Your Bike: Triumph Street Triple 765 R

Re: Chronic Myelomonocytic Leukemia

Postby duke63 » 12 Dec 2020, 14:12

Sorry to hear that, kwacky. (bear)
User avatar
duke63
 
Posts: 14172
Joined: 22 Oct 2013, 07:34
Location: Staffordshire
Has thanked: 3723 times
Been thanked: 3952 times
Your Bike: Ducati 748/853 & Triumph Street Triple 765RS

Re: Chronic Myelomonocytic Leukemia

Postby D6Nutz » 12 Dec 2020, 18:00

Sorry to hear kwacky.

Sent from my ONEPLUS A6013 using Tapatalk
You never really learn to swear until you learn to drive.

If everything seems under control, you're not going fast enough - Mario Andretti
User avatar
D6Nutz
 
Posts: 6410
Joined: 21 Oct 2013, 21:26
Has thanked: 671 times
Been thanked: 2103 times
Your Bike: BMW S1000XR

Re: Chronic Myelomonocytic Leukemia

Postby StMarks » 12 Dec 2020, 18:34

Very upsetting news for you Kwacky, stay strong for her mate.
User avatar
StMarks
 
Posts: 3857
Joined: 17 Mar 2014, 21:55
Location: East Riding of Yorkshire
Has thanked: 754 times
Been thanked: 1066 times
Your Bike: Daytona 675 graphite

Re: Chronic Myelomonocytic Leukemia

Postby Frankie » 12 Dec 2020, 19:40

Ah mate, sorry to read this :(
User avatar
Frankie
 
Posts: 3516
Joined: 11 Mar 2014, 21:37
Has thanked: 607 times
Been thanked: 1231 times
Your Bike: Fast Ones

Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 12 Dec 2020, 19:46

Thanks all. I had a chat with her this afternoon. She's still waiting for some test results. Once they've got those they'll come up with a plan. It's a life span versus quality of life decision now. She'll stay in hospital next week so they can do a full course of IV chemo to see how she responds.
User avatar
Kwacky
 
Posts: 34437
Joined: 21 Oct 2013, 21:52
Location: Brum
Has thanked: 3624 times
Been thanked: 7400 times
Your Bike: MV F3 800, AfricaTwin AS.

Re: Chronic Myelomonocytic Leukemia

Postby duke63 » 12 Dec 2020, 23:42

Very difficult to deal with. It hard enough in normal times but in these covid times its even harder when you cannot just go and sit and talk with her.

Hope she is able to have some decent quality of life over the coming months.
User avatar
duke63
 
Posts: 14172
Joined: 22 Oct 2013, 07:34
Location: Staffordshire
Has thanked: 3723 times
Been thanked: 3952 times
Your Bike: Ducati 748/853 & Triumph Street Triple 765RS

Re: Chronic Myelomonocytic Leukemia

Postby kiwikrasher » 13 Dec 2020, 00:35

We are all thinking of you and the family here mate
Happiness is not a destination. It is a way of life.
User avatar
kiwikrasher
 
Posts: 7879
Joined: 17 Mar 2014, 04:32
Location: Kurrajong Heights, NSW, Australia
Has thanked: 3722 times
Been thanked: 3712 times
Your Bike: ‘16 Thruxton R. '10 Multistrada 1200 S. ‘87 GB400TT

Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 24 Dec 2020, 17:15

She's responded to the chemo well enough to be allowed home for Christmas.
User avatar
Kwacky
 
Posts: 34437
Joined: 21 Oct 2013, 21:52
Location: Brum
Has thanked: 3624 times
Been thanked: 7400 times
Your Bike: MV F3 800, AfricaTwin AS.

Re: Chronic Myelomonocytic Leukemia

Postby StMarks » 24 Dec 2020, 17:34

Kwacky wrote:She's responded to the chemo well enough to be allowed home for Christmas.

That sounds like a lovely Xmas present for her.
User avatar
StMarks
 
Posts: 3857
Joined: 17 Mar 2014, 21:55
Location: East Riding of Yorkshire
Has thanked: 754 times
Been thanked: 1066 times
Your Bike: Daytona 675 graphite

Re: Chronic Myelomonocytic Leukemia

Postby kiwikrasher » 25 Dec 2020, 01:40

Kwacky wrote:She's responded to the chemo well enough to be allowed home for Christmas.


Great news!
Happiness is not a destination. It is a way of life.
User avatar
kiwikrasher
 
Posts: 7879
Joined: 17 Mar 2014, 04:32
Location: Kurrajong Heights, NSW, Australia
Has thanked: 3722 times
Been thanked: 3712 times
Your Bike: ‘16 Thruxton R. '10 Multistrada 1200 S. ‘87 GB400TT

Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 26 Feb 2021, 19:14

She's back in hospital. She went in for a blood test and her white voice cell count was over 200. It's supposed to be in single figures.

They're doing the usual tests and treatment but she's been told to have a chat with the family. She could have intensive chemo but it's really harsh and it's got about a 30% chance of improving things.

Without treatment we're looking at 3 or 4 weeks.

She's very tired and emotional at the moment. Because she's in hospital we can't go and see her.

It's going to be a tough few weeks.
User avatar
Kwacky
 
Posts: 34437
Joined: 21 Oct 2013, 21:52
Location: Brum
Has thanked: 3624 times
Been thanked: 7400 times
Your Bike: MV F3 800, AfricaTwin AS.

Re: Chronic Myelomonocytic Leukemia

Postby duke63 » 26 Feb 2021, 21:58

So sorry to hear that, Kwacky. If you ever want to rant then you know where I am.
User avatar
duke63
 
Posts: 14172
Joined: 22 Oct 2013, 07:34
Location: Staffordshire
Has thanked: 3723 times
Been thanked: 3952 times
Your Bike: Ducati 748/853 & Triumph Street Triple 765RS

PreviousNext

Return to Slapper Chat

Who is online

Users browsing this forum: kiwikrasher and 2 guests