Chronic Myelomonocytic Leukemia

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Re: Chronic Myelomonocytic Leukemia

Postby C00kiemonster » 27 Jun 2019, 12:56

Kwacky wrote:It looks like the deterioration has started in earnest. She's not been well recently. She's had some issues with her vision and feeling shaky.

At the end of last week she went in for some tests. She became unwell this weekend. She went back for more tests and was told to look at for certain warning signs, including bruises. The bruises appeared yesterday so my wife took her in to hospital which is where she is now. Some of her blood counts dont' look very promising so they're finalising some tests and coming up with a plan.

My mum's fear is that they're going to start chemo. That's essentially the start of the countdown.


That doesn't sound good.

How long is the countdown generally?

(bear)
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Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 27 Jun 2019, 13:08

Depends. Anything from a few months to a few years, it depends if there are any other issues and how the body responds to chemo. They'll know more once they've got the test results in.
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Re: Chronic Myelomonocytic Leukemia

Postby Cav » 27 Jun 2019, 13:12

I didn't see this post originally but bloody hell, that seems to be a fast advance from diagnosed to looking at a care plan.

I hope you and all your family are equipped to deal with it and let us know if there's anything we can do for you.
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Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 27 Jun 2019, 13:23

Cheers Cav. I suspect that my mum will be around for a few years yet. There's no way she's going to give up when she's still got plenty of moaning left to do :D
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Re: Chronic Myelomonocytic Leukemia

Postby Cav » 27 Jun 2019, 13:39

Haha love her! Well I hope she shows it a good fight. I haven't had a chance to research it but if it is curable I hope she can move on from it, if it isn't I hope she has a very long and comfortable life left to live :)

Pass on the support from all of us on here too - family of our admin is our family too (y)
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Re: Chronic Myelomonocytic Leukemia

Postby duke63 » 27 Jun 2019, 13:48

Sorry to read this, Kwacky.

I looked it up as MiL has acute myeloid leukaemia. It seems CML becomes AML in many cases.

MIL was due to start another course of injections this week but she was complaining of pains in her mouth and throat and they gave diagnosed an infection so the course has been put on hold.

Not great times, TBH.
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Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 27 Jun 2019, 14:15

I think that's the concern - it's now AML.
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Re: Chronic Myelomonocytic Leukemia

Postby Blade » 27 Jun 2019, 16:58

Sorry to hear this kwacky I hope you and your family are OK.

There is a lot of suggestion that alternative medicine can be effective fighting cancers. Is this something you have looked at?
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Re: Chronic Myelomonocytic Leukemia

Postby Frankie » 27 Jun 2019, 17:19

Ah mate I am so sorry to read this, I hope they can deal with it and she gets home soon. (bear)
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Re: Chronic Myelomonocytic Leukemia

Postby bb41 » 27 Jun 2019, 18:39

Sending over some positivity today.. wish I could do more but thoughts are with you all
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Re: Chronic Myelomonocytic Leukemia

Postby kiwikrasher » 27 Jun 2019, 22:56

;( Not good news Kwacky

I can’t offer much from over here, but you know where I am if you need to vent

Fingers crossed for her
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Re: Chronic Myelomonocytic Leukemia

Postby Rossgo » 28 Jun 2019, 23:11

Really sorry to hear this Kwacky mate. Really hope docs can help and more can be done. Sure she is a fighter and will be out soon

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Re: Chronic Myelomonocytic Leukemia

Postby Monty » 03 Jul 2019, 16:43

Just catching up, very sorry to read this Rich
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Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 11 Aug 2020, 12:39

My mum is in hospital. She's got an infection but they can't work out what it is. She's got a lot of Corona symptoms but the first test is negative. Her blood count is poor but they can't give her a transfusion until they deal with the virus or infection. She's on her own and no one can visit.
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Re: Chronic Myelomonocytic Leukemia

Postby duke63 » 11 Aug 2020, 12:43

Not nice times, Kwacky. I hope she gets sorted ASAP.

The frustration of not being able to visit a seriously ill relative is heartbreaking.
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Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 11 Aug 2020, 12:50

I spoke to get this morning and she sounded a little bit scared. She just wants to see someone.

These are challenging times.
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Re: Chronic Myelomonocytic Leukemia

Postby C00kiemonster » 11 Aug 2020, 13:14

I hope she improves.

Challenging when visiting is so restricted.
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Re: Chronic Myelomonocytic Leukemia

Postby D6 » 11 Aug 2020, 13:30

Sorry to heart his. Hope they get her treated and shes on the mend soon.
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Re: Chronic Myelomonocytic Leukemia

Postby duke63 » 11 Aug 2020, 14:27

It’s worth speaking to the senior nurse on duty and saying you want to bring some things in for her. That’s how we got round it and it’s totally dependent on the nurse on duty on the day.
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Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 11 Aug 2020, 15:06

Her husband had tried that. He's got to leave things at reception and they'll pass them on.
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