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Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 14:50
by Kwacky
I learned about a new disease today. CMML.

Sadly it's because my mum has got it.

Bugger.

Re: Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 15:04
by C00kiemonster
Oh ;(

Sorry to hear mate.

Whats the prognosis and is it treatable? Chronic doesnt sound good (bear)

Re: Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 15:25
by Monty
I don't know what that is, but I'm very sorry to hear it.

Re: Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 15:27
by Blade
Sorry to hear this Kwacky.

Is it treatable ?

Re: Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 17:11
by Kwacky
Not really. They monitor it until it reaches the next stage then offer chemo and blood transfusions.

Re: Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 18:27
by D6Nutz
Sorry to hear this mate.

My dad was diagnosed about 5 or so years ago with a form on leukemia. They gave him the same treatment plan, and so far it's been life as normal. Hopefully it will be the same for your mum.

Re: Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 18:27
by StMarks
Best wishes to your poor old mum, from StM & Deany

Re: Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 18:31
by kingfixer
Best wishes Kwacky

Re: Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 18:37
by Deegee
That is shit news Kwacky. It sounds as if it may possibly be treatable, but it’ll still loom large in your Mum’s life and inevitably for you and Mrs Kwacky. Fingers crossed for you all and hope it all works out for your Mum.

All the best, D,E and J.

Re: Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 18:51
by Cavetroll87
That's rubbish mate, best wishes for you and your mum

Re: Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 19:22
by duke63
Sorry to hear this Kwacky.

Best wishes to you all and hope they can treat it enough to give your mum some decent quality of life.

Re: Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 22:20
by Itchy
Sorry mate.

Re: Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 23:17
by kiwikrasher
Crap news mate..

The exes dad when through Lukemia when we were still together as well. I seriously thought he was done, but he pulled through and has been clear for 5 yrs.

So keep hope mate, even on the bad days.

Re: Chronic Myelomonocytic Leukemia

Posted: 20 Apr 2018, 23:27
by D41
Sorry to read this. All the best for a full recovery.

Re: Chronic Myelomonocytic Leukemia

Posted: 21 Apr 2018, 10:42
by Kwacky
Thanks everyone. It's a bit of a shock. But it's very early so fingers crossed they can slow it or stop it.

If my mum is like her mum she'll be around for another 20 years, telling us she's only got a few weeks left (lol)

Re: Chronic Myelomonocytic Leukemia

Posted: 21 Apr 2018, 12:40
by Perkles
O balls your mom's a good,n as well
Stay positive get her on cbd oil

Re: Chronic Myelomonocytic Leukemia

Posted: 21 Apr 2018, 13:57
by kiwikrasher
Perkles wrote:O balls your mom's a good,n as well
Stay positive get her on cbd oil
Also look at Copaiba oil as well

https://www.mygoodnessessentials.com.au ... nge-lives/" onclick="window.open(this.href);return false;

Re: Chronic Myelomonocytic Leukemia

Posted: 23 Apr 2018, 13:53
by Rossgo
Sorry to hear that mate. Best wishes to her

Sent from my SM-G935F using Tapatalk

Re: Chronic Myelomonocytic Leukemia

Posted: 26 Apr 2018, 09:14
by Cav
Sorry to hear that mate, fingers crossed she can lead a normal life while undergoing her treatment plan

Re: Chronic Myelomonocytic Leukemia

Posted: 27 Jun 2019, 12:44
by Kwacky
It looks like the deterioration has started in earnest. She's not been well recently. She's had some issues with her vision and feeling shaky.

At the end of last week she went in for some tests. She became unwell this weekend. She went back for more tests and was told to look at for certain warning signs, including bruises. The bruises appeared yesterday so my wife took her in to hospital which is where she is now. Some of her blood counts dont' look very promising so they're finalising some tests and coming up with a plan.

My mum's fear is that they're going to start chemo. That's essentially the start of the countdown.