Chronic Myelomonocytic Leukemia

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Chronic Myelomonocytic Leukemia

Postby Kwacky » 20 Apr 2018, 14:50

I learned about a new disease today. CMML.

Sadly it's because my mum has got it.

Bugger.
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Re: Chronic Myelomonocytic Leukemia

Postby C00kiemonster » 20 Apr 2018, 15:04

Oh ;(

Sorry to hear mate.

Whats the prognosis and is it treatable? Chronic doesnt sound good (bear)
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Re: Chronic Myelomonocytic Leukemia

Postby Monty » 20 Apr 2018, 15:25

I don't know what that is, but I'm very sorry to hear it.
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Re: Chronic Myelomonocytic Leukemia

Postby Blade » 20 Apr 2018, 15:27

Sorry to hear this Kwacky.

Is it treatable ?
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Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 20 Apr 2018, 17:11

Not really. They monitor it until it reaches the next stage then offer chemo and blood transfusions.
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Re: Chronic Myelomonocytic Leukemia

Postby D6Nutz » 20 Apr 2018, 18:27

Sorry to hear this mate.

My dad was diagnosed about 5 or so years ago with a form on leukemia. They gave him the same treatment plan, and so far it's been life as normal. Hopefully it will be the same for your mum.
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Re: Chronic Myelomonocytic Leukemia

Postby StMarks » 20 Apr 2018, 18:27

Best wishes to your poor old mum, from StM & Deany
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Re: Chronic Myelomonocytic Leukemia

Postby kingfixer » 20 Apr 2018, 18:31

Best wishes Kwacky
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Re: Chronic Myelomonocytic Leukemia

Postby Deegee » 20 Apr 2018, 18:37

That is shit news Kwacky. It sounds as if it may possibly be treatable, but it’ll still loom large in your Mum’s life and inevitably for you and Mrs Kwacky. Fingers crossed for you all and hope it all works out for your Mum.

All the best, D,E and J.
Last edited by Deegee on 20 Apr 2018, 19:04, edited 1 time in total.
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Re: Chronic Myelomonocytic Leukemia

Postby Cavetroll87 » 20 Apr 2018, 18:51

That's rubbish mate, best wishes for you and your mum
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Re: Chronic Myelomonocytic Leukemia

Postby duke63 » 20 Apr 2018, 19:22

Sorry to hear this Kwacky.

Best wishes to you all and hope they can treat it enough to give your mum some decent quality of life.
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Re: Chronic Myelomonocytic Leukemia

Postby Itchy » 20 Apr 2018, 22:20

Sorry mate.
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Re: Chronic Myelomonocytic Leukemia

Postby kiwikrasher » 20 Apr 2018, 23:17

Crap news mate..

The exes dad when through Lukemia when we were still together as well. I seriously thought he was done, but he pulled through and has been clear for 5 yrs.

So keep hope mate, even on the bad days.
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Re: Chronic Myelomonocytic Leukemia

Postby D41 » 20 Apr 2018, 23:27

Sorry to read this. All the best for a full recovery.
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Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 21 Apr 2018, 10:42

Thanks everyone. It's a bit of a shock. But it's very early so fingers crossed they can slow it or stop it.

If my mum is like her mum she'll be around for another 20 years, telling us she's only got a few weeks left (lol)
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Re: Chronic Myelomonocytic Leukemia

Postby Perkles » 21 Apr 2018, 12:40

O balls your mom's a good,n as well
Stay positive get her on cbd oil
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Re: Chronic Myelomonocytic Leukemia

Postby kiwikrasher » 21 Apr 2018, 13:57

Perkles wrote:O balls your mom's a good,n as well
Stay positive get her on cbd oil


Also look at Copaiba oil as well

https://www.mygoodnessessentials.com.au ... nge-lives/
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Re: Chronic Myelomonocytic Leukemia

Postby Rossgo » 23 Apr 2018, 13:53

Sorry to hear that mate. Best wishes to her

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Re: Chronic Myelomonocytic Leukemia

Postby Cav » 26 Apr 2018, 09:14

Sorry to hear that mate, fingers crossed she can lead a normal life while undergoing her treatment plan
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Re: Chronic Myelomonocytic Leukemia

Postby Kwacky » 27 Jun 2019, 12:44

It looks like the deterioration has started in earnest. She's not been well recently. She's had some issues with her vision and feeling shaky.

At the end of last week she went in for some tests. She became unwell this weekend. She went back for more tests and was told to look at for certain warning signs, including bruises. The bruises appeared yesterday so my wife took her in to hospital which is where she is now. Some of her blood counts dont' look very promising so they're finalising some tests and coming up with a plan.

My mum's fear is that they're going to start chemo. That's essentially the start of the countdown.
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